My news

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denimini
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Re: My news

Post by denimini »

It is a terrible journey for you. I will be thinking of you and hoping for the best.

Also a pity you are living in a country where your health outcomes are decided by insurance assessors ............ it is bad enough having them make decisions about a motor car.
Anthony, a denim miniskirt wearer in Outback Australia
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Fred in Skirts
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Re: My news

Post by Fred in Skirts »

My prayers are coming your way. Continue to look for good results.
Please keep us informed. :thumright:
"It is better to be hated for what you are than be loved for what you are not" Andre Gide: 1869 - 1951
Always be yourself because the people that matter don’t mind and the ones that mind don’t matter.
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Sinned
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Re: My news

Post by Sinned »

I will be praying for you ffa. I hope that the operation goes well, just remember that the surgeons have done this loads of times successfully. :D
I believe in offering every assistance short of actual help but then mainly just want to be left to be myself in all my difference and uniqueness.
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Elisabetta
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Re: My news

Post by Elisabetta »

Checking on you.How are you feeling FFA? I'm Praying you're doing well.
"When life gets blurry adjust your focus."
Freedomforall
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Re: My news

Post by Freedomforall »

Hello,

It has been a while since I posted and wanted to update everyone. The surgery took longer than expected at a full six hours instead of five. I was promised that morning by the anesthsiologist that my. They were not there and it took 6 agonizing hours for them to finally get to me.

I had to lie flat for 48 hours to keep my spinal fluid from. Of course they made an excpetion for this by having me get an MRI at midnight the second night. I did not really know a lot of what to expect after the surgery. Sleeping in a hospital is no fun. They were in my room all night the entire first night trying to get my IV lines situated.

I began walking on the 3rd day. That was when I began realizing the extent of things after the surgery. It took me a while to learn to walk properly again. I have numbness over 85% of my body. I made progress quickly but then the set backs started. The doctor informed me this surgery was inlike any I have ever had and that recovery is like a roller coaster. He was so right. It took me several weeks to learn to control my bowels and bladder. I still struggle with that and walking.

Somehow they injured my left arm during the surgery. They believe that it was from either picc line or the position they had me in. I noticed it the first day and they told me now to worry. It was only numbness in two fingertips on the left hand at that time. I would email the nurse weekly to update them and sometimes they would respond and others not. I have now lost use of my left arm and it is 75% numb just by itself. I have nothing that helps the pain. I honestly feel like I am in a living HELL. I am pretty much awake 24/7 with pain. Occasionally I can get a few minutes sleep here and ther. They tried several things like Gabbapentin and Lyria. Cannabis is not legal here for medical use. However, I intend to procure some of I fear I am going to break. There is only so much one can do whilst everyone in the house is asleep and you are up suffering! To make matters worse my kidney stone surgery that was delayed last year has not become an emergency surgery for next Tuesday. It went from 11mm to 18.5 mm. Of course I am now worried they will injure my other arm.
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Elisabetta
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Re: My news

Post by Elisabetta »

Time to talk to a lawyer and see what you're options are.I'm Praying for you and so sorry you're going through this.
"When life gets blurry adjust your focus."
Freedomforall
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Re: My news

Post by Freedomforall »

JennC03 wrote: Fri Apr 22, 2022 11:43 pm Time to talk to a lawyer and see what you're options are.I'm Praying for you and so sorry you're going through this.
Thank you. Sent you a message on Facebook. https://www.facebook.com/michelle.m.wilhoite
Faldaguy
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Re: My news

Post by Faldaguy »

Jenn may be on target for some financial compensation but that doesn't fix the body and pain; for that have you considered consulting a new group of Docs, Neurologists and Pain specialists, and see if an attorney can break loose some further consultations and in-home care while tackling this mess.

Your circumstances were unusual and that sometimes confounds the Docs trying to fit the new into old routines. My OH just had a sebaceous carcinoma, quite rare and local Docs wanted to use their normal approach to skin cancers whereas the Health Sciences research hospital had experience with those cancers a took an approach the was safer, easier, and more effective -- but had we listened to just the local Doctors, well intended though they may have been things could have been disastrous as the local Doctors simply were not adequately informed.

I don't recall how many opinions you were able to obtain in the urgency of the findings, but it may be time for yet another. Good luck with finding some relief, both short and long term. Do you have an advocate(s) to help with this, relieve your burden a little bit?
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Elisabetta
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Re: My news

Post by Elisabetta »

Freedomforall wrote: Sat Apr 23, 2022 1:03 am
JennC03 wrote: Fri Apr 22, 2022 11:43 pm Time to talk to a lawyer and see what you're options are.I'm Praying for you and so sorry you're going through this.
Thank you. Sent you a message on Facebook. https://www.facebook.com/michelle.m.wilhoite
You're welcome I never got your message on Facebook.Shoot me a friend's request on there.

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"When life gets blurry adjust your focus."
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moonshadow
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Re: My news

Post by moonshadow »

denimini wrote: Wed Feb 16, 2022 12:45 pm
Also a pity you are living in a country where your health outcomes are decided by insurance assessors ............ it is bad enough having them make decisions about a motor car.
Yep, and it's only getting worse. Our "pro-life" voting base wouldn't have it any other way. But hey, the most important thing is we don't have those perverted "men" in dresses in the women's room and we can pray at city council meetings... that's all that really matters, right? I sure am glad that our leaders have our best interest at heart every day! They wouldn't sell us out. NO WAY. Get out of here with that commie talk!

Unfortunately FFA's medical "care" situation is simply the norm. I've seen time and time again our medical system slowly kill those who enter into it's grasp. Unless you're very wealthy, famous, or a politician, medical "care" in the United States has to be the worst in the world.
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Faldaguy
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Re: My news

Post by Faldaguy »

by moonshadow » Mon Apr 25, 2022 3:46 am

denimini wrote: ↑Wed Feb 16, 2022 6:45 am

Also a pity you are living in a country where your health outcomes are decided by insurance assessors ............ it is bad enough having them make decisions about a motor car.

Unfortunately FFA's medical "care" situation is simply the norm. I've seen time and time again our medical system slowly kill those who enter into it's grasp. Unless you're very wealthy, famous, or a politician, medical "care" in the United States has to be the worst in the world.
Moon, not the worst in the world -- but by medical outcomes as measured annually in countries around the world by a US based University, it typically ranks about 25-38th. Sadly most 'Americans' (US Yankees) believe in the myth of US exceptionalism in everything including medical care. Aside from it also being the most expensive by far, it is far from the best -- nor is it at the bottom of the heap "outcome" wise -- but precautions are indeed warranted. Few of course have the option to go elsewhere even if they are lucky enough to have insurance as it is seldom portable and often a HMO with a limited providers, and certainly it is not portable. Top that with an industry that protects their own, even more so than the 'thin blue line' for cops.
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moonshadow
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Re: My news

Post by moonshadow »

Well, what FFA is having to endure is not medical care, it's abuse and torture.

.... and completely par for the course.

I dread the day I have to enter into that dreaded system. Sometimes I think I'd be better off in a third world hut.

I'd you are uninsured, proper medical care is non existent.

I've known several people over the years with serious health problem that simply went without medical treatment because they couldn't afford it. Some are dead now and I'm convinced not receiving treatment killed them.

But hey... we're "pro-life" and all that. Uh-huh... :roll:

That's why I really don't give a damn about that other issue that about got a thread locked. Why? Because this country doesn't give a damn about life.

Christ said "by their fruits you shall know them".

Well, the way I see it, we're a money worshipping culture... We'd rather see people perish than to spend a dollar to save a life...
-Andrea
The old hillbilly from the coal fields of the Appalachian mountains currently living like there's no tomorrow on the west coast.
rode_kater
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Re: My news

Post by rode_kater »

There's a nasty spiral here: first doctors get sued when things go wrong, so they get all defensive and start choosing different treatment options based what is best for them, rather than what is best for the patient. This story from the UK is kind of the extreme: that poor lady's health is shot, but at least the doctors didn't do any expensive treatments.

There's a saying in my family (translated): the only thing you really have is your health. Without that the rest is pointless.

I'd like to say it's better here in NL, but to be honest I don't know. I do know insurance companies aren't involved in treatment choices, they simply have to pay the bills presented to them. They do spend a lot of time trying to influence what is considered "best practice" though. They do have discretion to not completely pay for treatments/medication not in the standard rulebook, which sucks if you're one of those unlucky ones that has some rare condition. There are other minor things like they can choose to only reimburse the cheapest version of a particular medicine.

Suing a doctor here won't get you very far. Because everyone effectively has has unemployment insurance, health insurance, mortgage insurance, etc (we're one of the most over-insured countries in the world) it's hard to point to actual damages. You're already going to get your salary+medical expenses for the rest of your life including pension from insurance, the only thing you can achieve is getting a mark against the doctor's record (which is a worthwhile goal in itself, to be sure).

Freedomforall: I do hope you start feeling better and can regain some quality of life. Suing people may help on the financial side, but it's all just coloured paper if you can't actually enjoy life.
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Sinned
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Re: My news

Post by Sinned »

Looking from the outside I think that the way of paying for medical treatment through insurance is possibly the worst. Insurance should be for when things go wrong, not for covering the costs of medical treatments. The body going wrong is not an accident. Our NHS is not perfect, far from it, and is not the best in the world but it sort of works. We even have the principle of being able to choose where to have our treatment, it does not have to be done locally.

You said before your treatment that there was a lot of opportunities for things going wrong as seems to have happened. I really do feel for you in your state of pain. I hope that this is the low point and that you do improve from now on.
I believe in offering every assistance short of actual help but then mainly just want to be left to be myself in all my difference and uniqueness.
Freedomforall
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Re: My news

Post by Freedomforall »

Thank you all for your response. I obtained there Neurosurgeon options before having the procedure. The methods they all used varied greatly. The first two wanted to remove backbone and replace with a steel cage or screws and plates. The third one only took small othes out to be able to access them with a scope.

I have mixed emotions about handing them a lawsuit. I agree it makes it harder on everyone. Their insurance goes up and so does their rates. They also do less for the patient out of fear.

Consider this. I now have a diagnosed, Comolex Regional Pain Syndrome. I may have to deal with this for the rest of my life. If we ever have to change insurance this will be considered a pre-existing condition and most likely insurance will not cover it. It will be my responsibility and who knows how much that could cost
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